Blog

Book Review: 'Kill the Company' by Lisa Bodell (Published: 2012).&nbsp; Overview In 'Kill the Company', Lisa Bodell presents a compelling argument for why organisations must actively embrace change by eliminating outdated processes, bureaucracy, and complacency. She advocates for a culture of innovation, where businesses continuously challenge the status quo rather than merely maintaining it. Through practical exercises, real-world examples, and actionable frameworks, Bodell provides tools that help companies cultivate a more agile, creative, and forward-thinking workforce. Key Themes Eliminating Bureaucratic Waste – Bodell argues that organisations often stifle creativity by clinging to redundant processes and rigid hierarchies. She proposes a "kill the company" exercise, where employees actively brainstorm ways to dismantle their own organisation—forcing them to think about threats, inefficiencies, and areas for transformation. Encouraging Simplification – Overcomplication is one of the biggest barriers to innovation. Bodell stresses the importance of streamlining workflows, cutting unnecessary meetings, and creating a corporate environment that prioritises efficiency over formality. Empowering Employees – Innovation should not be confined to leadership; employees at every level should feel encouraged to contribute ideas and challenge outdated practices. The book provides strategies for fostering an open culture where critical thinking and problem-solving are valued. Making Change a Habit – Rather than treating innovation as a one-time initiative, Bodell argues that organisations must embed adaptability into their DNA. She provides tools and exercises to help leaders sustain a mindset of continuous improvement. Relevance in 2025 So, a main concern is, does the book still have relevancy over a decade later? Well, despite being published in 2012, I'd argue that 'Kill the Company' remains highly relevant in 2025, particularly in an era marked by (even more) rapid technological advancements, AI integration, and economic uncertainty. Businesses that fail to eliminate inefficiencies and encourage innovation risk falling behind more agile competitors. And, there are many in every industry! I need only reference the continuing rise of AI and automation – As AI continues to fundamentally reshape all manner of industries, Bodell’s call for adaptability is, perhaps, more critical than ever. Companies must continuously re-evaluate roles, processes, and skills to remain competitive. Remote and Hybrid Work Challenges – With many companies still adjusting (and lots of them badly!) to hybrid work models, Bodell’s principles of simplification and efficiency apply directly to modern workplace dynamics. Reducing unnecessary bureaucracy is vital for maintaining productivity across dispersed teams. Oh, how I detest the culture of useless lengthy meeting after meeting. Corporate Culture and Employee Engagement – In an age where employee experience is a key factor in retention, organisations that foster a culture of innovation and empowerment are more likely to attract and retain top talent. And, that's despite the culture of movement Millennials and Gen Z hold dear. Disruption in Every Industry – Whether it's the impact of climate change, shifting consumer behaviours, or geopolitical uncertainties, businesses today face constant disruption. Bodell’s emphasis on proactive change rather than reactive survival is essential. Limitations While Kill the Company is filled with valuable insights, some critiques include: Lack of Deep Case Studies – The book offers compelling anecdotes but I feel lacks in-depth analysis of how large-scale organisations have successfully implemented its principles. Focus on Mindset Over Execution – While the exercises are useful, some readers may find that the book leans more toward shifting corporate mindsets rather than providing detailed roadmaps for execution.<figure id="figure-c0oitosjgm6sehuem"><img id="c0oitosjgm6sehuem" src="https://cdn.durable.co/blocks/27bSCaz5MR8TigalE6LB5QEwABpbwOsXMYRFH9oOjXP3zbHe60B3ONMBbaZjEGz4.jpg" alt="" title="" class="object-cover bg-gray-100 " style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionX="undefined" data-positionY="undefined" data-fullWidth="false"/></figure> Rating: ★★★☆ (3/5) -Niall MacGiolla Bhuí, PhD.

Book Review: 'Kill the Company' by Lisa Bodell

Beautiful young Asian woman with headphones relaxing at home and using smartphone, checking social media on mobile phone, receives notification, likes, views and comments. Youth lifestyle, social media and digital online. People network and technology

<h3>&nbsp; Introduction</h3> We live in a world where consumerism has become the dominant force shaping our lives, dictating not just what we buy but who we are. Society rewards accumulation, material success, and status symbols while undervaluing creativity, exploration, and meaning. But this cultural obsession with consumption has profound implications for mental health, exacerbating anxiety and depression while suppressing the very creative impulses that could lead to fulfillment. We see this across the demographics especially so with the younger generations and I've written about this several times in the 'Mental Health For Millennials' book series (2017-2023).&nbsp;<figure id="figure-vuel6nwvaam6o67as1"><img id="vuel6nwvaam6o67as1" src="https://media.gettyimages.com/id/1054574096/photo/virtual-reality-concept.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=JJwOkjoWMk8c3aHRE7lqFxKvmyZqmS1kG3AGYbxyt2E=" alt="Virtual reality concept." title="Virtual reality concept." class="object-cover bg-gray-100 " style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1054574096/photo/virtual-reality-concept.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=JJwOkjoWMk8c3aHRE7lqFxKvmyZqmS1kG3AGYbxyt2E=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure>Artists, writers, and musicians have long warned us of this trap, urging us to reconsider our priorities. From Aldous Huxley’s Brave New World (1932), which portrays a dystopian society anesthetised by pleasure and consumption, to Banksy’s more recent satirical artwork critiquing capitalism, creative minds have continuously resisted the lure of consumer culture. In contrast, the research and lived experience are clear; when society values creativity over materialism, people experience deeper self-actualisation and emotional well-being.<h3>Consumerism and Mental Health: The Invisible Trap</h3> Numerous psychological studies have linked materialism with increased anxiety and depression. Kasser and Ryan (1996) found that individuals who prioritise extrinsic goals, such as wealth and status, report lower psychological well-being and higher distress. The constant cycle of wanting, acquiring, and feeling dissatisfied creates a void that cannot be filled with more purchases.Social media exacerbates this phenomenon. Platforms like Instagram and TikTok have turned self-worth into a commodity, where one’s value is measured in likes, shares, and brand collaborations. People curate their lives not based on creative fulfillment but on what sells. This fosters a culture of comparison, leading to feelings of inadequacy, as described by psychologist Jean Twenge (2017), who links social media-driven materialism to rising rates of teenage depression.<figure id="figure-r3mehhdqfm6o691st"><img id="r3mehhdqfm6o691st" src="https://media.gettyimages.com/id/1493776860/photo/beautiful-young-asian-woman-with-headphones-relaxing-at-home-and-using-smartphone-checking.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=qoc2GLBN740-9eoW5xO_iY-eCqZKSVUFjJQIHtKK82Y=" alt="Beautiful young Asian woman with headphones relaxing at home and using smartphone, checking social media on mobile phone, receives notification, likes, views and comments. Youth lifestyle, social media and digital online. People network and technology" title="Beautiful young Asian woman with headphones relaxing at home and using smartphone, checking social media on mobile phone, receives notification, likes, views and comments. Youth lifestyle, social media and digital online. People network and technology" class="object-cover bg-gray-100 " style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1493776860/photo/beautiful-young-asian-woman-with-headphones-relaxing-at-home-and-using-smartphone-checking.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=qoc2GLBN740-9eoW5xO_iY-eCqZKSVUFjJQIHtKK82Y=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>Example: The Hollow Pursuit of Status in Music</h3> Take the music industry as an example. The commercialisation of music has led to an overproduction of formulaic, algorithm-friendly songs designed to generate streams rather than provoke thought or emotion. Compare this to artists like Bob Dylan or Nina Simone, who used their music as a form of social and personal expression rather than a means to chase chart success. The modern industry’s prioritisation of virality over artistry contributes to feelings of creative stagnation among musicians and a passive, less engaged audience.<h3>Creativity as an Antidote to Anxiety</h3> Unlike consumerism, which thrives on dissatisfaction, creativity fosters mindfulness and a sense of purpose. Mihaly Csikszentmihalyi (1990) describes creativity as a gateway to “flow,” a mental state in which people lose themselves in meaningful work. This state has been linked to reduced anxiety and greater life satisfaction.Literature has often served as a counterforce to consumerism’s emptiness. Writers like George Orwell and Virginia Woolf used their work to challenge societal norms rather than conform to market trends. Woolf’s 'A Room of One’s Own' (1929) is a testament to the importance of personal space and creative freedom—concepts that are at odds with a consumerist culture that demands constant engagement and consumption. When people engage with literature that challenges their perceptions rather than reinforces market-driven ideologies, they cultivate depth, empathy, and resilience.<figure id="figure-gicno8sjb9m6o6a75s"><img id="gicno8sjb9m6o6a75s" src="https://media.gettyimages.com/id/522513933/photo/book-and-glowing-letters.jpg?b=1&s=2048x2048&w=0&k=20&c=Oc6Xn09ZweUQgDnD3w7il5B80UuA8q_19EQMy5LDwec=" alt="Book and glowing letters" title="Book and glowing letters" class="object-cover bg-gray-100 " style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionX="undefined" data-positionY="undefined" data-fullWidth="false"/></figure>Choosing Creativity Over Consumption Shifting from a consumerist mindset to a creative one is not just an act of personal liberation but a form of resistance against a system that profits from dissatisfaction. Here’s how we can make that shift:Prioritise Making Over Buying – Whether it’s writing, painting, or playing an instrument, engaging in creative pursuits fosters self-expression and mental clarity. Disconnect from Market-Driven Validation – Likes and follows are poor substitutes for genuine creative fulfillment. Focus on authenticity rather than virality. Reclaim Time for Reflection – Consumer culture thrives on distraction. Make space for contemplation, whether through reading, journaling, or spending time in nature. Support Independent Artists – Instead of mass-produced entertainment, invest time in discovering independent writers, musicians, authors and artists who challenge mainstream narratives. Rewriting the Narrative The culture of consumerism wants us to believe that happiness is one purchase away. But the truth is, no amount of material accumulation can replace the deep sense of satisfaction that comes from creating, exploring, and expressing. Art, music, and literature remind us that meaning is not something we buy—it’s something we make. By choosing creativity over consumption, we do more than just break free from anxiety and depression. We reclaim our humanity.<h3>References</h3> Csikszentmihalyi, M. (1990). Flow: The Psychology of Optimal Experience. Harper &amp; Row. Huxley, A. (1932). Brave New World. Chatto &amp; Windus. Kasser, T., &amp; Ryan, R. M. (1996). “Further Examining the American Dream: Differential Correlates of Intrinsic and Extrinsic Goals.” Personality and Social Psychology Bulletin, 22(3), 280-287. Twenge, J. (2017). iGen: Why Today's Super-Connected Kids Are Growing Up Less Rebellious, More Tolerant, Less Happy—and Completely Unprepared for Adulthood. Atria Books. Woolf, V. (1929). A Room of One’s Own. Hogarth Press.

Beyond the Buy: Consumerism and Creativity

The Story Behind The Polar Saga: A Journey of InspirationI’ve been absolutely delighted to receive so many lovely messages from you, all brimming with curiosity and enthusiasm about my new book, ‘The Polar Saga’. Many of you have asked, “How exactly did this story come about?” Today, I’m thrilled to take you behind the scenes and share a little bit about the incredible journey that led to the creation of this enchanting tale.<figure id="figure-avb6j07oxjm6faua9f"><img id="avb6j07oxjm6faua9f" src="https://cdn.durable.co/blocks/1d8DTezGSmloq7oA31bbuJePnNLKvBbhnEwumJgVRCMfB2KXYLcbyShZU2ST85Ei.jpg" alt="" title="" class="object-cover bg-gray-100 " style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionX="null" data-positionY="null" data-fullWidth="false"/></figure> Where the Ancient World Meets the Modern: Hong KongThe roots of ‘The Polar Saga’ trace back to my time in Hong Kong, a vibrant corner of the world that has captured my heart for years. This bustling metropolis is a fascinating blend of ancient traditions and modern life, where every street corner tells its own unique story. It was here, amidst the enchanting depths of lush bamboo forests and the soothing aroma of incense wafting through the air, that the inspiration for my narrative truly sparked. The atmosphere was alive with energy, and it beckoned me to explore the rich tapestry of culture and history that surrounded me.As I wandered through the streets, visiting serene Buddha statues and ancient temples, I found myself immersed in a world of wonder. The tranquillity of these sacred spaces offered a stark contrast to the city's hustle and bustle, allowing my mind to wander freely. Each moment was filled with whispers of the past, and the gentle rustle of leaves in the breeze stirred my imagination, painting vivid scenes in my mind that begged to be explored further. It was as if the very essence of the place was weaving together a tapestry of adventure and mystery, inviting me to dive deeper into these stories waiting to be told.<figure id="figure-e8aghq2hxem6fatgbp"><img id="e8aghq2hxem6fatgbp" src="https://cdn.durable.co/blocks/2aAP5HhFbLpCauryQKOBj57rXFdsbnz5rhrTHy3vYxubmxddDLqr8b1cOXGYtOWo.jpg" alt="" title="" class="object-cover bg-gray-100 " style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/2aAP5HhFbLpCauryQKOBj57rXFdsbnz5rhrTHy3vYxubmxddDLqr8b1cOXGYtOWo.jpg" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure> Back to the NordicsBut my journey didn’t stop there. As a native Swede, I felt an irresistible pull to connect with my beloved Nordics, where the landscapes, folklore, and mythology have always held a special place in my heart. The stark beauty of the Nordic regions, with their majestic mountains and serene lakes, provided a rich backdrop that I was eager to incorporate into my storytelling. I sought to merge the mystical elements of both cultures into the narrative, creating a unique fusion that reflects the beauty and complexity of our shared human experience. This blend of influences allowed me to craft a tale that resonates with both the spirit of Hong Kong and the heart of Scandinavia. All Wrapped-UpThe result is ‘The Polar Saga’, a tale that transcends borders and cultures, inviting readers to embark on a captivating adventure that intertwines the enchanting spirit of Hong Kong with the rich heritage of the Nordics. I am excited to share this world with you, filled with diverse characters and intricate plots, and hope that it resonates as deeply with you as it does with me.As I unveil the magic that inspired this tale, I invite you to reflect on your own journeys. What hidden stories lie in the places you’ve visited? What moments have inspired you along the way? I believe that every experience has the potential to spark creativity.

The Story Behind The Polar Saga

<h3>Discover the Hidden Depths of The Polar Saga</h3> There’s something truly magical about stories that transport us beyond the ordinary, and The Polar Saga is no exception. With its unique blend of vivid landscapes and deeply personal narratives, this series offers an adventure like no other—one that not only whisks you away to distant lands but also invites you to look inward and reflect on the connections that shape us. While the initial introduction to The Polar Saga showcased the grandeur of its settings and the strength of its characters, there is so much more waiting to be discovered. This is a story that unfolds in layers, slowly revealing its mysteries and offering an ever-richer experience with each turn of the page.<figure id="figure-o272saelmjm60vecgb"><img id="o272saelmjm60vecgb" src="https://cdn.durable.co/blocks/14TIAqCO6AgXgrRF4TSFgKIW9gEKBVApHAG9ZGQtxR4CIndStKKPBQJBtMBtAM3a.jpg" alt="" title="" class="object-cover bg-gray-100 " style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/14TIAqCO6AgXgrRF4TSFgKIW9gEKBVApHAG9ZGQtxR4CIndStKKPBQJBtMBtAM3a.jpg" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3> A Fresh Perspective on Adventure</h3> Unlike conventional fantasy tales, The Polar Saga does not rely solely on the spectacle of its icy vistas or ancient ruins. Instead, it delves deeper, exploring the emotional landscapes of its characters and the challenges they face. At its heart, this story is about perseverance in the face of adversity, the discovery of inner strength, and the quiet yet powerful bonds that develop between people from vastly different worlds. One of the most compelling aspects of the saga is how it balances the grandeur of its world with the intimacy of its themes. Every encounter, every journey, and every decision made by the characters serves as a reflection of what it means to live with purpose, to belong, and to leave a legacy.<h3> A Celebration of Heritage and Humanity</h3> What sets The Polar Saga apart is its celebration of cultural richness and heritage. While the story itself is fictional, the themes it explores are deeply rooted in our shared humanity. Through its richly diverse characters, the saga shines a light on the beauty of traditions, the complexity of identity, and the ways in which history shapes our present.<figure id="figure-8ha84h5ncom60vf52f"><img id="8ha84h5ncom60vf52f" src="https://cdn.durable.co/blocks/309lhDmJPMc3hetY5n3BOqcl0LAPi9KUVHWcDfvIaZr1UicuYTWqKMNVoUwh3E4Y.jpg" alt="" title="" class="object-cover bg-gray-100 " style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/309lhDmJPMc3hetY5n3BOqcl0LAPi9KUVHWcDfvIaZr1UicuYTWqKMNVoUwh3E4Y.jpg" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure> It is this emphasis on human connection and shared experiences that makes the saga so resonant. Readers will not simply lose themselves in the frozen tundra’s or mysterious temples—they will also see reflections of their own stories, struggles, and triumphs in the journeys of the characters.<h3> A Glimpse of What Lies Ahead</h3> As the release of The Polar Saga draws closer, the sense of anticipation only grows. The world it paints is vast and intricate, and the story promises even more breath-taking moments, surprising twists, and heartfelt lessons as it unfolds. If you are seeking a tale that is as thrilling as it is thought-provoking, The Polar Saga is one to watch. It is a story that not only entertains but lingers in the mind, inviting readers to explore its depths long after the final page has been turned. So, as we count down to its release, now is the perfect time to immerse yourself in the wonder of The Polar Saga. Prepare to be inspired, to be moved, and to embark on a journey that is both extraordinary and profoundly human.

Discover the Hidden Depths of The Polar Saga Post

In the early 20th century, hospitals often featured sun decks where patients could bask in natural sunlight. This practice was rooted in the belief that sun exposure played a therapeutic role in patient recovery, particularly for those suffering from ailments like tuberculosis. Facilities such as the Paimio Sanatorium in Finland, designed by architect Alvar Aalto, exemplified this approach with dedicated sun decks for patients.<figure id="figure-q6dv5n0j2m5xwikto"><img id="q6dv5n0j2m5xwikto" src="https://cdn.durable.co/blocks/3bTNWvxZyBsQam4JNztW17oDXqLS1UnUZdthI85NethMXccmroWdovMiaVi7tFwR.jpg" alt="A helipad looking down on the rooftop" title="A helipad looking down on the rooftop" class="object-cover bg-gray-100 " style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionX="undefined" data-positionY="undefined" data-fullWidth="false"/></figure>&nbsp;￼ However, as medical science advanced, (ahm, we’re using that term with a degree of irony) the emphasis on sun therapy sadly diminished. The advent of antibiotics and other treatments reduced reliance on natural remedies like sunlight. Additionally, concerns about overexposure to ultraviolet (UV) radiation and its link to skin cancer led to a reevaluation of sunbathing practices. Consequently, the once-common hospital sun decks gradually disappeared from medical facilities. In recent years, there’s been a renewed appreciation for the benefits of natural light in healthcare settings. Studies have shown that exposure to daylight can enhance mood, reduce stress, and even shorten hospital stays. For instance, research conducted at a general hospital in Korea found that patients with better access to daylight had hospital stays that were 16% to 41% shorter than those without. ￼<figure id="figure-wbz8n8vciohm5xwgqtt"><img id="wbz8n8vciohm5xwgqtt" src="https://media.gettyimages.com/id/1752806086/photo/3d-illustration-perspective-sketch-drawing-of-a-hospital-garden-with-seating-deck-and-hammock.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=jmfePBiFIIaa0WHKgqbZhhKLJVPeXWFPhkiVKs10z8M=" alt="3D illustration perspective sketch drawing of a hospital garden with seating deck and hammock surrounded by nature at sunrise" title="3D illustration perspective sketch drawing of a hospital garden with seating deck and hammock surrounded by nature at sunrise" class="object-cover bg-gray-100 " style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1752806086/photo/3d-illustration-perspective-sketch-drawing-of-a-hospital-garden-with-seating-deck-and-hammock.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=jmfePBiFIIaa0WHKgqbZhhKLJVPeXWFPhkiVKs10z8M=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure> Moreover, natural light plays a crucial role in the synthesis of vitamin D, essential for bone health and immune function. While direct sunbathing may no longer be prescribed, modern hospital designs often incorporate large windows, skylights, and open spaces to ensure patients receive adequate natural light. This approach balances the benefits of sunlight with the need to protect patients from potential harm due to overexposure. - Harry Hickey.

The Phenomenon of Hospital Sun Decks

Parenting is a journey filled with unexpected twists and turns, but raising a teenager with additional needs and profound scoliosis introduces a unique set of joys and challenges. As a mum based in Galway on the west coast of Ireland, I’ve come to appreciate not only the resilience of my child but also the deep lessons she teaches me every day about perseverance, patience, and love. This post explores the impact of this journey (supported by some peer-reviewed research for you science people and personal insights for those of you who want the more personal perspective.<figure id="figure-e387hg9cfmm5vlvjb8"><img id="e387hg9cfmm5vlvjb8" src="https://cdn.durable.co/blocks/2egmDvgGfc7rMfqPUjZ8FD4mRXk6oRgwJZGzjszBnvodGLt1DmEHlocA1tLjm7YM.jpg" alt="" title="" class="object-cover bg-gray-100 " style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionX="undefined" data-positionY="undefined" data-fullWidth="false"/></figure>&nbsp; The Joys: Witnessing Growth Beyond LimitsRaising a teenager with additional needs brings with it moments of triumph that many may overlook. Achievements—whether big or small—carry immense significance. From learning a new skill to overcoming barriers imposed by scoliosis, every milestone feels monumental. I am continually surprised when my teen speaks either words or phrases I simply do not expect to hear her say.&nbsp;1. A Resilient Spirit Despite the physical and emotional challenges associated with scoliosis and additional needs, teens often demonstrate remarkable resilience. Research by Reichel and Schanz (2003) highlights how adolescents with scoliosis develop a profound sense of emotional maturity over time, often finding ways to adapt and thrive in social and academic environments. Watching my teen navigate their world with determination has been a privilege, teaching me that resilience is not the absence of struggle, but the ability to move forward despite it. It is also humbling as the simplest tasks for her require significant focus and concentration. Carer fatigue is real but carer pride is a badge of honour.2. Deeper Connections Caregiving fosters a profound emotional bond. According to Norzila et al. (2015), families with children who have complex medical needs report stronger familial relationships and a deeper appreciation for shared moments. Each day presents opportunities to celebrate progress, laugh over shared triumphs, and embrace life’s unpredictability. For me, as a mum to a child with a moderate to severe learning disability, plus a physical disability, means that there is always childlike wonder in my house. The Tooth Fairy and Easter Bunny visit and so does Santa. The levels of excitement around such visits emanates throughout the house and positively impacts on everyone. Such moments are a beacon of light and help get through the more difficult days that are experienced. &nbsp;3. Advocacy as Empowerment Supporting a teen with additional needs and profound scoliosis has turned me into a passionate advocate. Research by Raina et al. (2005) emphasizes how advocacy can transform caregiving stress into empowerment, as parents find purpose in fighting for their children’s needs. In Ireland, a group was set up by parents called Our Children’s Health. Three fathers of children with disabilities campaigned outside the Taoiseach’s office every day from 20th May, 2014 until 2nd March, 2017 (1,028 days) to campaign for an automatic entitlement to a medical card for any child in receipt a Domiciliary Care Allowance. This allowance is paid to caregivers for children from birth to 16 years of age if the child has a severe disability and lives at home. A medical card gives you free access to General Practitioner Care, Hospital Care and Free Prescriptions also. Their tireless efforts and support from the general public ensured their voices were heard and their successful campaign had a significant and positive impact for thousands of families in Ireland.&nbsp;&nbsp; The Challenges: Navigating Complex TerrainWith the joys come undeniable challenges—both physical and emotional. Balancing the demands of caregiving with maintaining a sense of normalcy in family life requires resilience and adaptability.1. The Physical Strain Profound scoliosis often requires intensive medical care, from regular doctor’s visits to managing pain and mobility limitations. Studies such as those by Weiss and Moramarco (2013) have documented the high physical burden scoliosis places on both teens and their caregivers. As a mum, I’ve found myself juggling physiotherapy sessions, specialist appointments, and ensuring that everyday life remains as fulfilling as possible. As my daughter was diagnosed with idiopathic infantile scoliosis, her journey with her orthopaedic team commenced at one years old, with surgical intervention commencing at age 2. &nbsp;Repetitive growing rod surgeries (lengthening and part exchange) became the ‘norm’. &nbsp;2. Emotional Toll It’s common for both parents and teens to experience emotional fatigue. Teens with scoliosis may face self-esteem issues, as noted by Asher and Burton (2006), who found that body image concerns often peak during adolescence. Supporting my teen’s mental well-being while managing my own has required seeking professional help and fostering open, honest communication. Connection with professionals together with fostering friendships with other parents in similar situations significantly reduces emotional fatigue. As the old adage states… ‘a problem shared is a problem halved’.&nbsp;3. Navigating the System Accessing appropriate resources for a child with dual challenges—additional needs and profound scoliosis—can feel like navigating a maze. Services are often fragmented, requiring parents to become experts in healthcare, education, and social services. Peer-reviewed research by Brehaut et al. (2004) highlights the overwhelming stress caregivers experience due to systemic barriers and the lack of integrated carFinding Strength and HopeDespite these challenges, hope persists. Support groups, both online and in-person, have been a lifeline for me, offering camaraderie and shared experiences. Evidence suggests that parents who engage with peer support networks experience reduced stress and increased confidence in their caregiving roles (Trute et al., 2010). Similarly, celebrating small victories, from a pain-free day to achieving a goal, has provided moments of light in what can sometimes feel like an uphill journey.Lived experience is also crucial to both the person with the medical issue and their caregiver. Research shows that while academic and medical research is paramount to identifying and treating medical issues, “there is evidence to suggest that those who lived with experience hold powerful insights that can help improve health systems, research and policy.’ [1]Having lived experience is a powerful tool to have and enables you to contribute to discussions/decisions on your care plan and long term medical/community intervention. Subsequently, for those in a caregiving role, your insight is invaluable to other caregivers, particularly those on the start of their journey. &nbsp;I personally have benefited from such advice from other caregivers. &nbsp;&nbsp; Lessons Learned: A Mum’s PerspectiveAs a mum, raising a teenager with additional needs and profound scoliosis has taught me invaluable lessons:Perspective Matters: Each challenge is an opportunity for growth. Ask for Help: It’s not a sign of weakness but of strength. Celebrate the Little Things: Progress, no matter how small, deserves recognition. Most importantly, my teen has shown me that there is beauty in imperfection and strength in vulnerability. Through their journey, I’ve found a greater appreciation for life’s resilience and the power of unconditional love.&nbsp; ConclusionRaising a teenager with additional needs and profound scoliosis is a journey marked by joy, resilience, and challenges. It requires balancing the physical and emotional demands of caregiving with a deep appreciation for life’s small victories. For parents on similar journeys, know that you are not alone. Seek support, celebrate progress, and take pride in the extraordinary resilience of your child and yourself. The bond shared with a child with a disability is a deep bond, intensified by the shared experiences of medical, physical, psychological and emotional states of being. Research shows that &nbsp;“Parents spoke about profound changes in their lives as a result of caring for their child, but such changes often brought fulfilment to their lives and this appeared to help them cope reasonably well. For example, many parents expressed a deep personal bond with their child which they felt was unlike any other.”[2]&nbsp; ReferencesAsher, M., &amp; Burton, D. (2006). Adolescent scoliosis: Psychological implications and self-esteem outcomes. Journal of Pediatric Orthopaedics, 26(5), 467-472. Brehaut, J. C., Kohen, D. E., &amp; Raina, P. (2004). Caregiving and its impact: Insights from the Canadian National Population Health Survey. Pediatrics, 114(4), e355–e361. Norzila, M. Z., Anuar, M. S., &amp; Rosliza, A. H. (2015). Parenting challenges in chronic illnesses: A qualitative perspective. Asian Social Science, 11(16), 83-93. Raina, P., O’Donnell, M., Rosenbaum, P., et al. (2005). The health and well-being of caregivers of children with cerebral palsy. Pediatrics, 115(6), e626-e636. Reichel, D., &amp; Schanz, J. (2003). Psychosocial impact of scoliosis in adolescence: A review of the literature. Spinal Deformities, 15(4), 239-246. Trute, B., Hiebert-Murphy, D., &amp; Wright, A. (2010). Coping strategies of parents raising children with severe disabilities. Child: Care, Health, and Development, 36(1), 4-13. Weiss, H. R., &amp; Moramarco, M. (2013). Scoliosis treatment in adolescence: Current challenges and opportunities. Current Pediatric Reviews, 9(1), 59-66. &nbsp; [1] https://www.whysocialscience.com/blog/2024/1/31/because-it-helps-us-incorporate-lived-experience-into-health-research[2] https://eprints.maynoothuniversity.ie/id/eprint/9297/1/SM-Caring-2007.pdf &nbsp;